World Hemophilia Day 2016: Treatment for All is the Vision of All

April 17, 2016

Precision BioLogic is pleased support the World Federation of Hemophilia (WFH) mark World Hemophilia Day. This year, the WFH is focused on bringing attention to a challenge that too many people in the bleeding disorder community face: lack of access to diagnosis, treatment and care.

There is an enormous discrepancy in the level of care available to patients with a bleeding disorder around the world.  While some are diagnosed very young, and have medical care throughout their life, most do not. Treatment exists for those with a bleeding disorder but without the correct care many patients still suffer debilitating pain, permanent joint damage, or death.

Ensuring that someone with a bleeding disorder is diagnosed early and is cared for is a shared responsibility.  The WFH has been working toward the shared vision of Treatment for All for more than 50 years but the support of the entire community is much needed.

"This is Precision BioLogic's fourth year supporting the WFH and World Hemophilia Day," says Paul Empey, the company's executive vice president. "Through our support, we hope to ensure people with bleeding disorders have access to early diagnosis and care."

About hemophilia and other bleeding disorders

Hemophilia, von Willebrand disease, inherited platelet disorders, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or else it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not functioning. People with hemophilia can experience uncontrolled bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability while bleeding into major organs, such as the brain, can cause death. 

About the World Federation of Hemophilia

For 50 years, the World Federation of Hemophilia (WFH), an international not-for-profit organization, has worked to improve the lives of people with hemophilia and other inherited bleeding disorders. Established in 1963, it is a global network of patient organizations in 122 countries and has official recognition from the World Health Organization. Visit WFH online at www.wfh.org.