On April 17, 2018, the global bleeding disorders community and the World Federation of Hemophilia (WFH) will come together to promote and encourage Sharing Knowledge and the role it plays in building a stronger community. Precision BioLogic is pleased to support the WFH and World Hemophilia Day.
World Hemophilia Day offers an opportunity to help people with bleeding disorders live healthier, longer and more productive lives by educating and empowering them through knowledge sharing, information exchanges, education, and training.
To ensure all members of the bleeding disorder community have access to important clinical and patient-focused information, the WFH developed the WFH eLearning Platform. The platform features more than 500 important resources—in six languages—including guides, fact sheets, videos, articles, games, and interactive modules that are downloadable for free, and are well-suited for any learning style or area of interest.
We encourage you to visit the eLearning Platform to learn more about bleeding disorders.
About hemophilia and other bleeding disorders
Hemophilia, von Willebrand disease, inherited platelet disorders, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or else it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not functioning. People with hemophilia can experience uncontrolled bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability while bleeding into major organs, such as the brain, can cause death.
About the World Federation of Hemophilia
For over 50 years, the World Federation of Hemophilia (WFH)—an international not-for-profit organization— has worked to improve the lives of people with hemophilia and other inherited bleeding disorders. Established in 1963, it is a global network of patient organizations in 134 countries and has official recognition from the World Health Organization. To find out more about the WFH, visit www.wfh.org.